The global ahus registry
Web21 Nov 2016 · Here, we describe a collaboration between an international group of patient organisations advocating for patients with atypical haemolytic uraemic syndrome (aHUS), the aHUS Alliance, and an international aHUS patient registry (ClinicalTrials.gov NCT01522183 ). Web3 Dec 2024 · Methods: Of patients enrolled in the Global aHUS Registry (n = 1549), 344 had ≥1 kidney transplant. Of these, 188 had received eculizumab. Eighty-eight patients (47%) …
The global ahus registry
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Web9 Nov 2024 · The registry Alexion Pharmaceuticals sponsors the aHUS registry ( NCT01522183 ), which opened in 2012 and runs through December 2024. It plans to … WebMethods: The observational Global aHUS Registry ( NCT01522183 ), initiated in April 2012, collects demographics, disease history, treatment, and outcomes data for patients with aHUS, regardless of treatment approach.
WebThis retrospective analysis utilized data from the Global aHUS Registry (NCT01522183), an observational, noninterventional, multicenter registry that retrospectively and … Web21 Nov 2016 · The Global aHUS Registry (US National Institutes of Health www.ClinicalTrials.gov Identifier NCT01522183) is an observational, non-interventional, multicentre registry of patients with aHUS, and is a product of a partnership between worldwide academia, patients with aHUS and Alexion Pharmaceuticals, Inc. The aims of …
Web29 May 2024 · Atypical haemolytic uraemic syndrome (aHUS) is a rare disease that manifests as complement-mediated thrombotic microangiopathy (TMA), which can lead … WebClinical characteristics and outcomes of a patient population with atypical hemolytic uremic syndrome and malignant hypertension: analysis from the Global aHUS registry Clinical characteristics and outcomes of a patient population with atypical hemolytic uremic syndrome and malignant hypertension: analysis from the Global aHUS registry Authors
Web3 Dec 2015 · The aHUS Registry, established in April 2012, is an observational, noninterventional, multicenter, global initiative to collect information on patient outcomes regardless of treatment approach. It facilitates availability of follow-up data for eculizumab.
Web15 Nov 2024 · Methods: The Global aHUS Registry collects data on patients with aHUS to develop a greater understanding of the condition and advance disease management. The … hiskiWebDue to the rarity of the disease, global aHUS disease epidemiology is not well known. 16 When reported, incidence and prevalence estimates are often combined with similar disorders such as shiga toxin-producing e.coli associated hemolytic uremic syndrome (STEC-HUS) or thrombotic thrombocytopenic purpura (TTP), leading to inaccurate … hiskespalos attorneyWebBaseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry — the UWA Profiles and Research Repository Baseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry hiskia majesty pandinWeb20 May 2024 · Similar findings were established in the Global aHUS registry, in this study 344 received one or more kidney transplant,188 had received eculizumab. In this study, 88 patients (47%) were received eculizumab before and … hiskiaWeb21 Nov 2016 · The Global aHUS Registry (US National Institutes of Health www.ClinicalTrials.gov Identifier NCT01522183) is an observational, non-interventional, multicentre registry of patients with aHUS, and is a product of a partnership between worldwide academia, patients with aHUS and Alexion Pharmaceuticals, Inc. The aims of … hiskia emdenWeb24 May 2016 · For aHUS there is also a global registry. Sometimes referred to as the Alexion Registry, the aHUS Registry was set up as a clinical trial called officially: “An … The reports for aHUS Alliance Global Action are accessible at the Charity … Get all the latest news from the aHUS world. For more information: Two updates on the Global aHUS Community Advisory Board. There is … GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT. Twitter. aHUS … We thank those who collaborate on global aHUS research efforts, and extend our … Welcome to the aHUS Alliance Global Action’s Information Centre! Containing a … With our PayPal Giving account fully established we could see at last who the … 2016 aHUS Global Poll – Results aHUS Patient Global Voice In a multi-national … hiskias hämäläinen 1869WebThe global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, medical and disease history, treatment effectiveness and safety outcomes data for aHUS patients. The global aHUS Registry will operate for a minimum of 5 years of follow-up. hiskias